I realize I haven't blogged in a few months. And I had every intention of writing about a slew of things, that in hindsight seem rather pointless, especially now that my life has changed forever.
I spent a week and a half in February visiting my parents in Arizona. I knew my Dad hadn't been feeling too well, but I was hoping he'd feel better and come home to Pennsylvania in April on the mend. My entire trip, he was ill. His stomach hurt, he felt nauseous, didn't want to eat. I even went with him to the doctor to see what was wrong and they told him he probably had caught the stomach bug that was going around at the time. Their suggestion was yet more pills, adding to the dozens he was already taking for a slew of other things.
Despite not feeling well, he still tried to make my vacation memorable. He took me horseback riding and brought me to an orange grove I had been wanting to visit. He took me out for dinner and drove me to stores he wanted me to see...even though most of the time he waited for us in the car.
The night before I left, I spent the evening watching television with my Dad. He kept telling me he couldn't believe my trip was over and how fast the time had gone and how he wished I didn't have to leave. Little did I know, I'd be back in just a couple of weeks.
After I flew home, my dad's back began to hurt immensely. He finally gave in and went to the emergency room to find out what was causing all the pain. The doctors discovered a tumor in his spine, which he had had for a number of years had begun to grow and inadvertently cracked his vertebrae in the process. But to determine what caused the sudden growth, the doctors decided to run more tests.
I knew the answer to those tests wouldn't be good...I had had an eerie feeling the past few months that something wasn't right...If only I had been wrong.
My mom called me on a Saturday and told me to cancel my work trip to Europe and fly to Arizona right away - Dad had stage IV small cell carcinoma in his right lung, which had already spread to his liver. On Sunday, I sat in the White Plains airport terminal, as my mom further updated me that my dad only had four to six months to live. I sat there for what seemed forever just crying, tears streaming down my face. Even as I boarded the plane, I couldn't stop the tears, they just kept coming.
That next day, I saw my dad in the hospital. I had to leave the room at first, it was too emotional for me. He was on so much pain medicine, it wasn't him. He knew who I was, but I could see that things were far worse than I had expected. I had come to Arizona with hope...hope he'd get better, hope I'd be able to bring him home, hope I wouldn't lose my dad. But when the doctor came in to speak with me, some of that hope was torn away when he told me that my father was not a candidate for chemotherapy and that in fact, he only had a few weeks left.
A few weeks? A few weeks? I kept asking, how did we go from four to six months to a few weeks? How did my Dad go from being fine over Christmas to now only having a few weeks left on this earth? Despite my puffy eyes and tear stained face, I went into Amanda PR mode and started planning and calling and arranging things. I was determined to get my dad out of the hospital and home to Pennsylvania. I really thought I had a chance.
That day, Dad was released to a rehabilitation facility, which was meant to help him gain strength in his legs, so we could bring him home to Pennsylvania. That night was difficult. Transferring my dad from the hospital to the center took a lot out of him and mom and I cried the entire ride home that night, thinking that was it. To our surprise though, the next morning my Dad looked pretty good. He was even talking a bit, which he wasn't doing the day before. They had him out of bed and in a wheel chair. It was progress. Maybe we could bring him home.
Over the next few days, family and friends flew in to see my Dad and say their final goodbyes. That Wednesday, Dad and I sat together for lunch. He was talking more now and more himself. He asked me what was wrong with him and what kind of timeframe he was looking at. He said, "what's my prognosis?" I had wanted my mother to be there, but he insisted I tell him and he promised, "I won't tell mom you told me." I held his hand and as the tears streamed down my face, I said, "Dad you have Stage IV lung cancer and it has already spread. You're not a candidate for chemo, so the doctors are saying . . . you only have a few weeks left." I will never forget the look on his face...the shock in his eyes. I quickly said, "But you know how much I love you right?" and my dad replied, with his strong determination, "You know how much I love you?"
The days that followed, my dad did seem to come back to us. We had real conversations and he was lucid. I spent that Friday night watching television with him...Blue Bloods, our favorite show to watch together. He asked me if I thought we were doing the right thing...not pursuing chemo and actually going ahead with direct injection radiation in his spine to help reduce the tumor size and the pain, in order to bring him to PA. I told him I did and he said he thought it was the right thing too. He thanked me for being there with him and I said I love being here with you. He said, I wish you could be here all the time. He even called to check on me and make sure I got back to the house alright that night.
The day before he left the rehab center, my mother and brother and I surrounded my dad as he gave us instructions and told us how much we meant to him. I couldn't help but cry. I asked him if he'd get strong enough to dance with me to what would have been my father-daughter dance song, "Through the Years" by Kenny Rogers. He said, "I'm going to try." I told him how much I loved him, that he was my best friend and that he was supposed to be there for my wedding. He said what he always said, "I'll always be there." I told him I'd probably talk to him every day and he said, "I'll be listening" and he promised he'd ask God to hurry and send me the person I was supposed to be with.
His oncologist had him come home to the house in Arizona that Sunday. At least he could be comfortable there. I took him to the radiation oncologist that Tuesday. It was a tough day. They gave him a very large dose of radiation and he got very sick when we brought him home. He basically slept into the next day. Wednesday he was in and out. He started to say random things and wasn't eating. We moved him to a hospital bed in his room and decided to bring in hospice. I didn't notice it at the time, because my Dad always had breathing problems, but the death rattle started on Wednesday. I did notice how swollen his stomach was and I knew the end was close. I told him that day, that it was ok, he could go. That he didn't have to stay for me, I'd take care of our family and it was time for him to be with my brother Stephen. Funny enough, a couple of hours later (I think he was processing things at different times) he said to me, "I'm in no hurry Amanda."
That night he was delusional, saying things that didn't make sense and it was like he was somewhere else. At one point, I asked him, "Who's your daughter?" And even though he was slipping, he looked at me and firmly pointed to me. So I know he knew who I was and that I was with him.
I slept in his room that night. Every few hours, I'd wake up, hearing him talk. Finally around 5:30 a.m. he started to speak loudly. He said, "I don't know Will." Then he said, "It's so white." I said, "What's so white daddy?" He replied, "It's just so white." I then rubbed his head and said, "shhhh, it's ok daddy. Close your eyes, go to sleep." Around 6:15 a.m. I left the room to sleep in my own bed for a few hours. I woke up around 7:15 and finally went into his room at 7:30. My mom was sleeping, but the room was eerily quiet...still. I looked at my dad...it was like he was sleeping, but I knew something was wrong. I paused and ached to hear him breath, but I didn't...he chest wasn't rising. I ran to his side and touched his hand, "Daddy?" But as soon as I touched his hand, I knew...he was cold...he was gone.
I woke my mom...I told her I thought Daddy was gone and he was. I watched her try to wake the love of her life, gut wrenching sobs filling the house. I left the room and almost collapsed with grief, crying so hard and so deep, my abdominal muscles actually ached the next day.
On March 14 around 7:15 a.m., my Dad left this earth. I read that people often wait for the person they feel most protective of to leave the room before passing. And although I wish I had been holding my father's hand as he left this world for the next, I'm filled with incredible love knowing I was that person for him.
The next few days were a blur, filled with funeral arrangements and sympathy cards, and phone calls, and flowers, and family. I arranged my father's funeral and gave the final eulogy I can only hope he was proud of how it all turned out.
In September or October of last year, I had watched an Oprah Winfrey interview with Chris Christie of all people. He recounted how he was with his mother a few days before she died. His mother said to him, "Chris, why are you here? Get back to work, there's nothing left unsaid between us." I mentioned that to my dad one day, when we were in the car. I said, I want that to be the case with you and me. My dad didn't miss a beat, he said to me, "It already is. You know how much I love you." So, I find peace and comfort in knowing my Dad and I were so close that there is nothing else I would have or should have said. He knew it all. But it still doesn't ease the immense pain and loss I feel in my heart.
We always knew he wouldn't be here forever...probably me more than anyone else. But I thought he'd have more time. I thought he'd see me fall in love and get married and I prayed he'd meet his grandchildren. But what's to be is to be. The tears at this point are just too much, so I should probably close my little novel with this...My dad lived a great life despite it all and I can only hope he'll continue to walk with me for the rest of my life...always in my heart.